There are many diseases, other than cancer, which can shorten a person’s life or limit the person’s ability to live life fully. There are many organisations which can help with diseases such as MS, Parkinson’s, CJD and other life-limiting illnesses.
British Heart Foundation
British Lung Foundation
Huntington’s Disease Association
The Huntington's Disease Association is a UK registered charity which supports people affected by Huntington's disease. They also provide information and advice to families, friends and healthcare professionals who support Huntington's disease families.
Motor Neurone Disease Association
The Motor Neurone Disease Association funds and promotes research into the disease and provides support for people affected by MND.
Multiple Sclerosis Society
The National Creutzfeldt-Jakob Disease
The incidence of Creutzfeldt-Jakob disease (CJD) is monitored in the UK by the National CJD Research & Surveillance Unit (NCJDRSU) based at the Western General Hospital in Edinburgh, Scotland. The Unit brings together a team of clinical neurologists, neuropathologists and scientists specialising in the investigation of this disease. See the CJD website for information on care and support available.
UK National Kidney Federation
The national kidney patient charity in the United Kingdom. The charity supports people with kidney disease as well as those people close to them. See NKF for further information.
A UK charity supporting people with a stoma. The charity offers support, reassurance and practical information to anyone who may be about to have, or already has a colostomy. See the Colostomy Association.
Lymphoedema Support Network
The Lymphoedema Support Network is a registered UK charity which provides information and support to people who live with lymphoedema. See Lympheodema.org for further information.
The GM Cancer Education Team &
Macmillan Lymphoedema Programme Team
These videos provide a quick and easy demonstration to aid your skin care management to help reduce the risk of lymphoedema.
The links to the full video are below, with & without subtitles.
Whole video: https://vimeo.com/413585454/f4e7523bac
Whole video (S): https://vimeo.com/431394912/8ee9b965fe
The Urostomy Association helps people who have a urinary diversion, such as a urostomy, continent urinary pouch or neo bladder. The association also assists carers. See the Urostomy Association website for further information.